Table 3.

Importance of elements related to end-of-life care from patients' perspective

QuestionExtremely/Somewhat UnimportantUnsureExtremely/Somewhat Important
How important is it for you to be informed about your prognosis (i.e., how your illness will progress)?6.02.290.6
How important is detailed information about your medical condition?3.32.790.6
How important is it for you to be informed about treatment options such as withdrawing dialysis?6.94.385.1
How important is it for you to have your physical symptoms (e.g., pain, nausea) treated by the nephrology staff?8.25.584.4
How important is it for you to be prepared and plan ahead in case of death?5.57.783.2
How important is it to you to have access to information on alternative ways to manage your physical symptoms (e.g., traditional medicine, new treatments, holistic care, etc.)8.58.080.5
How important is it to you for your family to be actively involved in medical decision making?11.56.379.3
How important is it for your “quality of life” responses to affect your future care?6.713.276.1
How important is it for you to discuss your “quality of life” regularly with our nephrology staff?13.28.472.1
How important is it for you to have your social, psychological, or spiritual concerns attended to by nephrology staff?22.915.256.5
  • Values are percentages. Even where data were missing, percentage was calculated out of the total number of study patients (N = 584).