Table 1.

The final version of the Kidney Disease Loss Scale (KDLS)a

When you consider life as it is now with kidney disease and dialysis treatments, it is clearly different from what your life used to be or would have been. You might find yourself having lost many things. Please consider LOSSES: things that you used to do before kidney disease/dialysis and now you cannot do anymore or things that you would have been doing if you did not have kidney disease/dialysis. Please list below the five most important things you have lost because of the kidney disease/dialysis.
1:
2:
3:
4:
5:
In regard to the five losses described above, please read each of the following statements carefully and circle a number 0, 1, 2 or 3 that indicates how much the statement applied to you
The rating scale is as follows:
0 = Did not apply to me at all
1 = Applied to me to some degree, or some of the time
2 = Applied to me to a considerable degree, or a good part of time
3 = Applied to me very much, or most of the time
1. I think about these losses so much that it is hard for me to do the everyday things I normally do0123
2. Memories of the losses upset me0123
3. I am preoccupied with thoughts of the losses0123
4. I feel myself longing for regaining what I have lost0123
5. I feel disbelief over what happened0123
6. I feel stunned or dazed over what happened0123
  • a The first part of the KDLS that requires respondents to nominate the five most important losses must be retained when the KDLS is used, because it sets the context for rating the six items.