Home dialysis care domains and aspects of care from concept elicitation focus groups
| Grouped Area and Home Dialysis Care Domain | No. of Mentions | Key Aspects of Care |
|---|---|---|
| Communication and education | ||
| Dialysis center staff education of patients and patient-centered communication | 107 | Clarity and quality of communication between staff, patient, care partner |
| Accuracy, completeness, flexibility of education content | ||
| Effectiveness in addressing patient’s questions | ||
| Nephrologist education of patients and patient-centered communication | 15 | Frequency of communication between nephrologist, patient, care partner |
| Availability of nephrologist and communication with dialysis staff | ||
| Concern and helpfulness of the care team | ||
| Concern and helpfulness of the dialysis center staff | 36 | Perception by patient that staff members are caring, informed, respectful |
| Perception by patient that staff members are proactive and helpful when asked | ||
| Concern and helpfulness of the nephrologist | 7 | Perception by patient that nephrologist is caring, informed |
| Nephrologist shows respect and takes patient seriously | ||
| Support services | 38 | Availability of social work, dietitian, transportation services |
| Availability of backup and respite care | ||
| Care partner training and support | 7 | Degree to which care partners receive training and support from staff |
| Proficiency of the care team | ||
| Dialysis center staff proficiency | 36 | Perception by patient that dialysis staff members can manage problems, deliver timely care, and show/perform technical aspects of dialysis |
| Patient-centered care | ||
| Personalization of care | 39 | Patient perception that staff members take patients’ values and preferences into account in treatment decisions and integration of treatment into life |
| Patient involvement in care | 12 | Inclusion of patients in decisions regarding dialysis modality |
| Patient comfort in asking questions about care | ||
| Access and convenience of care | 31 | Accessibility of home dialysis center |
| Ease of contacting dialysis center staff | ||
| Accessibility of different dialysis modalities | ||
| Confidence and safety to perform dialysis at home | 33 | Confidence in performing all steps of dialysis procedure |
| Knowledge of response to complications, emergencies, disasters | ||
| Handling of grievances | 3 | Response by dialysis staff members to complaints and comfort of patients in raising complaints |
| Care coordination | ||
| Care coordination | 39 | Perception of patient regarding cooperation among providers |
| Amenities and environment | ||
| Facility amenities and environment | 15 | Cleanliness, convenience, quality of dialysis facility space |
| Dialysis supplies, equipment, and home environment | 30 | Convenience and accessibility of dialysis supply and delivery process |
| Helpfulness of staff in dealing with supply issues |
Care partner was defined as any person identified by the individual undergoing dialysis as important in assisting in any aspect of the dialysis care.