Table 1.

Characteristics of the participants (N=67)

Characteristicsn (%)
Role
 Patient54 (81)
 Caregiver13 (19)
Sex
 Male24 (36)
 Female43 (64)
Country
 United States (3 groups)21 (31)
 Australia (4 groups)28 (42)
 United Kingdom (3 groups)18 (27)
Ethnicitya
 White42 (63)
 Black (American)11 (16)
 Black (British)4 (6)
 Asian4 (6)
 Othera6 (9)
Age, yr
 18–304 (6)
 31–5020 (30)
 51–7038 (57)
 >705 (7)
Marital status
 Single16 (24)
 Married/partnered39 (58)
 Divorced/separated10 (15)
 Widowed2 (3)
Number of children
 018 (27)
 1–232 (48)
 ≥317 (25)
Employment
 Full time24 (36)
 Part time/casual11 (16)
 Student3 (4)
 Not employed/disabled13 (19)
 Retired16 (24)
Education
 Before 10th grade (before age 16 yr)4 (6)
 Completed 10th grade (age 16 yr)5 (7)
 Completed 12th grade (ages 17–18 yr)7 (10)
 Professional certificate11 (16)
 Undergraduate degree22 (33)
 Postgraduate degree18 (27)
Age at time of diagnosisb
 <185 (7)
 18–3011 (16)
 31–5023 (34)
 51–7014 (21)
Cause of kidney diseaseb
 Diabetes9 (13)
 Hypertension19 (28)
 PKD7 (10)
 GN19 (28)
 Infection2 (3)
 Immune/autoimmune7 (10)
 Reflux nephropathy1 (1)
 Unknown/do not know3 (4)
 Other6 (9)
Type of KRT (current)b
 None16 (24)
 Hemodialysis14 (21)
 Peritoneal dialysis4 (6)
 Kidney transplant20 (30)
Duration of KRT (current)b
 <6 mo1 (1)
 6–12 mo3 (4)
 1–3 yr13 (19)
 4–6 yr7 (10)
 >6 yr15 (22)
  • Numbers may not total 67 if not reported or participants could select multiple options. Approximately n=37 refused to participate or did not attend the focus groups because of other commitments, illness, or did not want to participate. PKD, polycystic kidney disease.

  • a Included Hispanic Latino (n=1), Aboriginal Australian (n=1), Pakistani (n=2), Middle Eastern (n=1), and Indian (n=1).

  • b Not applicable to caregivers.