Table 2.

Transplant- and kidney-focused organizations with LDKT resources

OrganizationWebsiteDescription
Kidney disease and treatment options
 American Association of Kidney Patientshttp://www.aakp.orgProvides advocacy, education, and interaction for kidney patients
 Coalition on Donationhttp://www.organtransplants.org/donor/coalition/Manages and promotes donation, develops and executes effective multimedia donor education programs, and motivates the American public to register now as organ, eye, and tissue donors
 Explore Transplanthttp://www.ExploreTransplant.orgSupports patients and kidney care providers with educational programs and training seminars
 Kidney Schoolhttp://kidneyschool.org/Features educational models for patients and providers about kidney disease and its treatments
 Living Donors Onlinehttp://www.livingdonorsonline.orgProvides an online network for living donors (including potential donors) and their families providing education, support, and advocacy
 National Kidney Foundationhttp://www.kidney.orgProvides information for patients, medical professionals, and the public
 PKD Foundationhttp://www.pkdcure.orgOffers comprehensive information about polycystic kidney disease and its treatment options
 Renal Support Networkhttp://www.rsnhope.orgProvides nonmedical services to those affected by CKD, including education about transplantation
 Renewalhttp://www.life-renewal.org/homeProvides education, referrals, and logistical support to Jewish patients seeking and receiving living donor transplantation or living donors
 Transplant Livinghttp://www.transplantliving.orgOffers information about living donation and supporting patients throughout the process
 Transplant Recipients International Organizationhttp://www.trioweb.org/Provides education about transplantation in general, as well as financial issues around transplantation
 US Department of Health and Human Serviceshttp://www.organdonor.govProvides comprehensive information about organ donation and transplantation
Locating a transplant center
 Organ Procurement and Transplantation Networkhttp://optn.transplant.hrsa.govProvides a member directory that allows patients to search for nearby transplant centers
Financial assistance with transplant
 American Kidney Fundhttp://www.kidneyfund.orgEducates patients about financial support for treatment, medication, and surgery costs
 American Transplant Foundationhttp://www.americantransplantfoundation.orgFinancially assists with lost wages after surgery and lack of access to essential medications
 HelpHOPELivehttps://m.helphopelive.org/supportfortransplantSupports patients in fundraising campaigns to help cover medical costs of transplantation; raises awareness about transplantation
 Kidney Transplant/Dialysis Associationhttp://www.ktda.org/Provides financial aid, education, and social activities for kidney patients and donors
 National Foundation for Transplantshttp://www.transplants.orgAssists transplant candidates and recipients in raising money for costs not covered by insurance
 National Living Donor Assistance Centerhttp://www.livingdonorassistance.orgProvides financial assistance with travel costs and expenses associated with living organ donation
Provides education about alternative LDKT options
 Alliance for Paired Donationhttp://www.paireddonation.orgLinks transplant candidates with matching potential living donors and provides education about paired donation
 Living Donation Californiahttp://livingdonationcalifornia.org/living-donors-are-needed/Educates about the need for living donation and the living donation process, especially for motivated individuals who do not have a specified recipient
 National Kidney Registryhttp://www.kidneyregistry.org/Links transplant candidates with matching potential living donors and provides education about paired donation
 United Network for Organ Sharinghttp://www.unos.org/donation/index.php?topic=kpdProvides information about kidney paired donation and about the United Network for Organ Sharing’s Kidney Paired Donation Pilot Program
  • LDKT, living donor kidney transplantation.