Table 2.

Transplant- and kidney-focused organizations with LDKT resources

Kidney disease and treatment options
 American Association of Kidney Patientshttp://www.aakp.orgProvides advocacy, education, and interaction for kidney patients
 Coalition on Donation and promotes donation, develops and executes effective multimedia donor education programs, and motivates the American public to register now as organ, eye, and tissue donors
 Explore Transplanthttp://www.ExploreTransplant.orgSupports patients and kidney care providers with educational programs and training seminars
 Kidney School educational models for patients and providers about kidney disease and its treatments
 Living Donors Onlinehttp://www.livingdonorsonline.orgProvides an online network for living donors (including potential donors) and their families providing education, support, and advocacy
 National Kidney Foundationhttp://www.kidney.orgProvides information for patients, medical professionals, and the public
 PKD Foundationhttp://www.pkdcure.orgOffers comprehensive information about polycystic kidney disease and its treatment options
 Renal Support Networkhttp://www.rsnhope.orgProvides nonmedical services to those affected by CKD, including education about transplantation
 Renewal education, referrals, and logistical support to Jewish patients seeking and receiving living donor transplantation or living donors
 Transplant Livinghttp://www.transplantliving.orgOffers information about living donation and supporting patients throughout the process
 Transplant Recipients International Organization education about transplantation in general, as well as financial issues around transplantation
 US Department of Health and Human Serviceshttp://www.organdonor.govProvides comprehensive information about organ donation and transplantation
Locating a transplant center
 Organ Procurement and Transplantation Networkhttp://optn.transplant.hrsa.govProvides a member directory that allows patients to search for nearby transplant centers
Financial assistance with transplant
 American Kidney Fundhttp://www.kidneyfund.orgEducates patients about financial support for treatment, medication, and surgery costs
 American Transplant Foundationhttp://www.americantransplantfoundation.orgFinancially assists with lost wages after surgery and lack of access to essential medications
 HelpHOPELive patients in fundraising campaigns to help cover medical costs of transplantation; raises awareness about transplantation
 Kidney Transplant/Dialysis Association financial aid, education, and social activities for kidney patients and donors
 National Foundation for Transplantshttp://www.transplants.orgAssists transplant candidates and recipients in raising money for costs not covered by insurance
 National Living Donor Assistance Centerhttp://www.livingdonorassistance.orgProvides financial assistance with travel costs and expenses associated with living organ donation
Provides education about alternative LDKT options
 Alliance for Paired Donationhttp://www.paireddonation.orgLinks transplant candidates with matching potential living donors and provides education about paired donation
 Living Donation California about the need for living donation and the living donation process, especially for motivated individuals who do not have a specified recipient
 National Kidney Registry transplant candidates with matching potential living donors and provides education about paired donation
 United Network for Organ Sharing information about kidney paired donation and about the United Network for Organ Sharing’s Kidney Paired Donation Pilot Program
  • LDKT, living donor kidney transplantation.