RT Journal Article
SR Electronic
T1 Setting Research Priorities for Patients on or Nearing Dialysis
JF Clinical Journal of the American Society of Nephrology
JO CLIN J AM SOC NEPHROL
FD American Society of Nephrology
SP 1813
OP 1821
DO 10.2215/CJN.01610214
VO 9
IS 10
A1 Manns, Braden
A1 Hemmelgarn, Brenda
A1 Lillie, Erin
A1 Dip, Sally Crowe P.G.
A1 Cyr, Annette
A1 Gladish, Michael
A1 Large, Claire
A1 Silverman, Howard
A1 Toth, Brenda
A1 Wolfs, Wim
A1 Laupacis, Andreas
YR 2014
UL http://cjasn.asnjournals.org/content/9/10/1813.abstract
AB With increasing emphasis among health care providers and funders on patient-centered care, it follows that patients and their caregivers should be included when priorities for research are being established. This study sought to identify the most important unanswered questions about the management of kidney failure from the perspective of adult patients on or nearing dialysis, their caregivers, and the health care professionals who care for these patients. Research uncertainties were identified through a national Canadian survey of adult patients on or nearing dialysis, their caregivers, and health care professionals. Uncertainties were refined by a steering committee that included patients, caregivers, researchers, and clinicians to assemble a short-list of the top 30 uncertainties. Thirty-four people (11 patients; five caregivers; eight physicians; six nurses; and one social worker, pharmacist, physiotherapist, and dietitian each) from across Canada subsequently participated in a workshop to determine the top 10 research questions. In total, 1570 usable research uncertainties were received from 317 respondents to the survey. Among these, 259 unique uncertainties were identified; after ranking, these were reduced to a short-list of 30 uncertainties. During the in-person workshop, the top 10 research uncertainties were identified, which included questions about enhanced communication among patients and providers, dialysis modality options, itching, access to kidney transplantation, heart health, dietary restrictions, depression, and vascular access. These can be used alongside the results of other research priority–setting exercises to guide researchers in designing future studies and inform health care funders.