Skip to main content

Main menu

  • Home
  • Content
    • Published Ahead of Print
    • Current Issue
    • Podcasts
    • Subject Collections
    • Archives
    • ASN Meeting Abstracts
    • Saved Searches
  • Authors
    • Submit a Manuscript
    • Author Resources
    • Reprint Information
  • Trainees
    • Peer Review Program
    • Prize Competition
  • About CJASN
    • About CJASN
    • Editorial Team
    • CJASN Impact
    • CJASN Recognitions
  • More
    • Alerts
    • Advertising
    • Reprint Information
    • Subscriptions
    • Feedback
  • ASN Kidney News
  • Other
    • JASN
    • Kidney360
    • Kidney News Online
    • American Society of Nephrology

User menu

  • Subscribe
  • My alerts
  • Log in
  • My Cart

Search

  • Advanced search
American Society of Nephrology
  • Other
    • JASN
    • Kidney360
    • Kidney News Online
    • American Society of Nephrology
  • Subscribe
  • My alerts
  • Log in
  • My Cart
Advertisement
American Society of Nephrology

Advanced Search

  • Home
  • Content
    • Published Ahead of Print
    • Current Issue
    • Podcasts
    • Subject Collections
    • Archives
    • ASN Meeting Abstracts
    • Saved Searches
  • Authors
    • Submit a Manuscript
    • Author Resources
    • Reprint Information
  • Trainees
    • Peer Review Program
    • Prize Competition
  • About CJASN
    • About CJASN
    • Editorial Team
    • CJASN Impact
    • CJASN Recognitions
  • More
    • Alerts
    • Advertising
    • Reprint Information
    • Subscriptions
    • Feedback
  • ASN Kidney News
  • Visit ASN on Facebook
  • Follow CJASN on Twitter
  • CJASN RSS
  • Community Forum
Public Policy Series
You have accessRestricted Access

In Data We Trust: The Role and Utility of Dialysis Provider Databases in the Policy Process

Mahesh Krishnan, Helen M. Wilfehrt and Eduardo Lacson
CJASN November 2012, 7 (11) 1891-1896; DOI: https://doi.org/10.2215/CJN.03220312
Mahesh Krishnan
*Medical Informatics and
†Medical Office, DaVita Clinical Research, Minneapolis, Minnesota; and
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Helen M. Wilfehrt
*Medical Informatics and
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
Eduardo Lacson Jr.
‡Fresenius Medical Care, Waltham, Massachusetts
  • Find this author on Google Scholar
  • Find this author on PubMed
  • Search for this author on this site
  • Article
  • Figures & Data Supps
  • Info & Metrics
  • View PDF
Loading

Article Figures & Data

Figures

  • Tables
  • Figure 1.
    • Download figure
    • Open in new tab
    • Download powerpoint
    Figure 1.

    Data flow in the nephrology setting. High-level description of the dialysis information system within large dialysis organizations and the interactions with external databases.

Tables

  • Figures
    • View popup
    Table 1.

    Summary of select data sources in the nephrology setting

    Data SourceDescriptionLimitations
    Centers for Medicare and Medicaid Services (CMS)Claims data collected under amendment to Public Law 92–603; additional data collection limited (e.g., Form CMS-2728)Limited clinical data (actual treatments) and delay in availability (currently 2 years behind)
    US Renal Data System (2) (http://www.usrds.org/)Funded by the National Institute of Diabetes and Digestive and Kidney Diseases; laims, epidemiologic, and clinical-based, stand-alone database (diagnoses, demography, biochemical data, claims, treatment and payor histories, hospitalization events, physician/supplier services, and providers)Delay in availability (currently 2 years behind)
    University of Michigan Kidney Epidemiology and Cost Center (3)This group produces Dialysis Facility Reports under contract with CMS and provides them to individual facilities; each facility is provided information on their patients, treatment patterns, transplantation patterns, hospitalization, and mortality rates compared with local and national averagesPredominantly based on claims data, limited clinical data (actual treatments), and delay in availability (currently ∼1 year behind)
    Individual insurersClaims data collected based on insurance claimsLimited clinical data (actual treatments) and limited availability as patients transfer between insurers
    United Network for Organ Sharing Registry (5) (http://www.unos.org/)Registry of patients awaiting solid organ transplants, with limited data available after transplantationLimited clinical data (i.e., actual treatments, cormidities, and outcomes)
    Quotidien Dialysis Registry (6) (http://www.quotidien.org)Registry originally designed to collect data about outcomes on intensive hemodialysis prescriptions (>5 times/wk); now, it also includes data on other alternative hemodialysis regimensLimited to select forms of dialysis
    Dialysis information systems from large dialysis organizationsDatabases created using facility-based clinical systems that collect detailed data about what orders and treatments are given within a dialysis facility, including detailed laboratory test data and prescriptionsLimited details on comorbidities, limited information about what happens outside the clinic (e.g., hospitals), limited information about nuances of care, and living datasets subject to availability at the time of data pull
PreviousNext
Back to top

In this issue

Clinical Journal of the American Society of Nephrology: 7 (11)
Clinical Journal of the American Society of Nephrology
Vol. 7, Issue 11
November 07, 2012
  • Table of Contents
  • Table of Contents (PDF)
  • Index by author
View Selected Citations (0)
Print
Download PDF
Sign up for Alerts
Email Article
Thank you for your help in sharing the high-quality science in CJASN.
Enter multiple addresses on separate lines or separate them with commas.
In Data We Trust: The Role and Utility of Dialysis Provider Databases in the Policy Process
(Your Name) has sent you a message from American Society of Nephrology
(Your Name) thought you would like to see the American Society of Nephrology web site.
CAPTCHA
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.
Citation Tools
In Data We Trust: The Role and Utility of Dialysis Provider Databases in the Policy Process
Mahesh Krishnan, Helen M. Wilfehrt, Eduardo Lacson
CJASN Nov 2012, 7 (11) 1891-1896; DOI: 10.2215/CJN.03220312

Citation Manager Formats

  • BibTeX
  • Bookends
  • EasyBib
  • EndNote (tagged)
  • EndNote 8 (xml)
  • Medlars
  • Mendeley
  • Papers
  • RefWorks Tagged
  • Ref Manager
  • RIS
  • Zotero
Request Permissions
Share
In Data We Trust: The Role and Utility of Dialysis Provider Databases in the Policy Process
Mahesh Krishnan, Helen M. Wilfehrt, Eduardo Lacson
CJASN Nov 2012, 7 (11) 1891-1896; DOI: 10.2215/CJN.03220312
del.icio.us logo Digg logo Reddit logo Twitter logo CiteULike logo Facebook logo Google logo Mendeley logo
  • Tweet Widget
  • Facebook Like

Jump to section

  • Article
    • Introduction
    • Sources of Data
    • Dialysis Provider Information Systems and Databases
    • Comparative Advantages of DISs over Other Sources
    • Utility and Impact on Policy
    • Limitations of Provider Databases
    • Future Directions
    • Conclusion
    • Disclosures
    • Acknowledgments
    • Footnotes
    • References
  • Figures & Data Supps
  • Info & Metrics
  • View PDF

More in this TOC Section

  • New Organ Allocation System for Combined Liver-Kidney Transplants and the Availability of Kidneys for Transplant to Patients with Stage 4–5 CKD
  • Consolidation in the Dialysis Industry, Patient Choice, and Local Market Competition
  • New Opportunities for Funding Dialysis-Dependent Undocumented Individuals
Show more Public Policy Series

Cited By...

  • Pragmatic Trials in Maintenance Dialysis: Perspectives from the Kidney Health Initiative
  • Bone Parameters and Risk of Hip and Femur Fractures in Patients on Hemodialysis
  • Depressive Affect and Hospitalization Risk in Incident Hemodialysis Patients
  • Guiding Principles and Checklist for Population-Based Quality Metrics
  • Sickle Trait in African-American Hemodialysis Patients and Higher Erythropoiesis-Stimulating Agent Dose
  • Google Scholar

Similar Articles

Related Articles

  • No related articles found.
  • PubMed
  • Google Scholar

Articles

  • Current Issue
  • Early Access
  • Subject Collections
  • Article Archive
  • ASN Meeting Abstracts

Information for Authors

  • Submit a Manuscript
  • Trainee of the Year
  • Author Resources
  • ASN Journal Policies
  • Reuse/Reprint Policy

About

  • CJASN
  • ASN
  • ASN Journals
  • ASN Kidney News

Journal Information

  • About CJASN
  • CJASN Email Alerts
  • CJASN Key Impact Information
  • CJASN Podcasts
  • CJASN RSS Feeds
  • Editorial Board

More Information

  • Advertise
  • ASN Podcasts
  • ASN Publications
  • Become an ASN Member
  • Feedback
  • Follow on Twitter
  • Password/Email Address Changes
  • Subscribe

© 2021 American Society of Nephrology

Print ISSN - 1555-9041 Online ISSN - 1555-905X

Powered by HighWire