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Original ArticlesChronic Kidney Disease
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Development and Validation of an Electronic Health Record–Based Chronic Kidney Disease Registry

Sankar D. Navaneethan, Stacey E. Jolly, Jesse D. Schold, Susana Arrigain, Welf Saupe, John Sharp, Jennifer Lyons, James F. Simon, Martin J. Schreiber, Anil Jain and Joseph V. Nally
CJASN January 2011, 6 (1) 40-49; DOI: https://doi.org/10.2215/CJN.04230510
Sankar D. Navaneethan
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Stacey E. Jolly
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Jesse D. Schold
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Susana Arrigain
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Welf Saupe
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John Sharp
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Jennifer Lyons
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James F. Simon
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Martin J. Schreiber
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Anil Jain
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Joseph V. Nally
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Summary

Background and objectives Chronic kidney disease (CKD) is increasing, and outcomes-related research from diverse health care settings is needed to target appropriate efforts and interventions. We developed an electronic health record (EHR)-based CKD registry at the Cleveland Clinic and validated comorbid conditions.

Design, setting, participants, & measurements Patients who had at least one face-to-face outpatient encounter with a Cleveland Clinic health care provider and (1) had two estimated GFR values <60 ml/min per 1.73 m2 >90 days apart as of January 1, 2005 and/or (2) were patients with International Classification of Diseases-9 (ICD-9) diagnosis codes for kidney disease were included.

Results Our registry includes 57,276 patients (53,399 patients met estimated GFR criteria and 3877 patients met ICD-9 diagnosis code criteria) as of March 2010. Mean age was 69.5 ± 13.4 years, with 55% women and 12% African Americans. Medicare is the primary insurer for more than one half of the study cohort. The κ statistics to assess the extent of agreement between the administrative dataset extracted from the EHR and actual EHR chart review showed substantial agreement (>0.80) for all conditions except for coronary artery disease and hypertension, which had moderate agreement (<0.60).

Conclusions Development of an EHR-based CKD registry is feasible in a large health system, and the comorbid conditions included in the registry are reliable. In addition to conducting research studies, such a registry could help to improve the quality of care delivered to CKD patients and complement the ongoing nationwide efforts to develop a CKD surveillance project.

Footnotes

    • Received May 14, 2010.
    • Accepted August 4, 2010.
    • Copyright © 2011 by the American Society of Nephrology
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    Clinical Journal of the American Society of Nephrology: 6 (1)
    Clinical Journal of the American Society of Nephrology
    Vol. 6, Issue 1
    1 Jan 2011
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    Development and Validation of an Electronic Health Record–Based Chronic Kidney Disease Registry
    Sankar D. Navaneethan, Stacey E. Jolly, Jesse D. Schold, Susana Arrigain, Welf Saupe, John Sharp, Jennifer Lyons, James F. Simon, Martin J. Schreiber, Anil Jain, Joseph V. Nally
    CJASN Jan 2011, 6 (1) 40-49; DOI: 10.2215/CJN.04230510

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    Development and Validation of an Electronic Health Record–Based Chronic Kidney Disease Registry
    Sankar D. Navaneethan, Stacey E. Jolly, Jesse D. Schold, Susana Arrigain, Welf Saupe, John Sharp, Jennifer Lyons, James F. Simon, Martin J. Schreiber, Anil Jain, Joseph V. Nally
    CJASN Jan 2011, 6 (1) 40-49; DOI: 10.2215/CJN.04230510
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    More in this TOC Section

    Original Articles

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    • APOL1 Nephropathy Risk Alleles and Risk of Sepsis in Blacks
    • The Incidence, Causes, and Risk Factors of Acute Kidney Injury in Patients Receiving Immune Checkpoint Inhibitors
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    Chronic Kidney Disease

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    • Cardiovascular Safety and All-Cause Mortality of Methoxy Polyethylene Glycol-Epoetin Beta and Other Erythropoiesis-Stimulating Agents in Anemia of CKD
    • Serum Calcification Propensity and Clinical Events in CKD
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    Cited By...

    • Using electronic health record data to establish a chronic kidney disease surveillance system in China: protocol for the China Kidney Disease Network (CK-NET)-Yinzhou Study
    • Pragmatic Randomized, Controlled Trial of Patient Navigators and Enhanced Personal Health Records in CKD
    • Cause-Specific Deaths in Non-Dialysis-Dependent CKD
    • CKD as a Model for Improving Chronic Disease Care through Electronic Health Records
    • Renal Resistive Index and Mortality in Chronic Kidney Disease
    • Implantable Cardioverter-Defibrillators in Patients with CKD: A Propensity-Matched Mortality Analysis
    • Prenatal Risk Factors for Childhood CKD
    • Type 2 Translational Research for CKD
    • Metabolic Syndrome, ESRD, and Death in CKD
    • Serum Bicarbonate and Mortality in Stage 3 and Stage 4 Chronic Kidney Disease
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